A Ballinasloe mother says her two young daughters are being deprived of living a normal life by the failure of the HSE to agree a new drug deal for people with Cystic Fibrosis.
Grainne Ui Luing whose two young daughters have CF says they and 33 other children with the condition have been left off a list of approved people because their particular rare gene has not been included in the previous deal.
The HSE and Vertex struck a deal five years ago to provide Kaftrio to CF patients, and it has been a life changing experience for those approved since then.
Both sides have been arguing about the cost of including 36 patients in the 6 to 11 year old age group since May of this year and it means the drug isn't available to Grainne's two children.
Grainne spoke to Anne Norris on todays Let's Talk show.
